Saturday, November 26, 2011

PREGNANCY UPDATE


I suppose it’s time for an update on my pregnancy.  I haven’t posted anything about it since we announced we were pregnant! It’s funny how you get pregnant and never think about things that can go wrong.  Especially since my first 2 pregnancies and births were perfect and healthy.  Never, until now, have I looked at a child and understood how much of a miracle they are.  It’s such an amazing process and there really are so many things that can go wrong.   To get a healthy baby is truly a miracle.  Enter our situation:
Our baby has been diagnosed with Trisomy 13, which is a chromosomal abnormality. The median life span for Trisomy 13 babies is 2.5 days, 82% die within 1 month, and 95% die within 6 months.
I had another ultrasound last week and we have a little better idea of what's happening. The baby’s kidneys appear to not be functioning correctly because they are larger and lighter in color than normal. This is one of the defects brought on by Trisomy 13. If the kidneys aren’t functioning correctly then he can't urinate, and apparently urine is the main source of amniotic fluid (gross, huh?). Because of his kidney issues there is almost no amniotic fluid, which prevents him from breathing in fluid, which is a crucial part of lung development. Currently there doesn't appear to be much danger for him in the womb because the cord takes care of all his oxygen and nourishment. After birth his greatest immediate risks will be the lack of lung development, and if by a miracle he is able to breathe, the kidney failure. Right now the likeliest scenario that has been laid out for us is that his heart might beat for an hour or so, even if he can't breathe, and then he'll pass in our arms. Although we know it's part of Heavenly Father's plan, that part will be tough for us. Even though we're making plans to handle the worst, we're still hoping for the best.
We decided to name the baby Landon, so now we don't have to refer to him as "it" or "the baby" anymore. We want you all to know that we appreciate all the love and support we've received and ask for your continued thoughts and prayers. Because we're still processing and taking this information in, we ask for your patience. Sometimes we may not feel like answering the phone or email, but want you to know that those things don't go unnoticed or unappreciated.  We have been overwhelmed by the amount of service that has been given us and we appreciate it so much.  We have truly felt the love from all of those around us and find comfort in knowing we have so many people around us to rely on.

17 comments:

Tracy Giles said...

You are in our constant prayers. We love you guys.

Jenny said...

I like the name Landon. I'm thinking about you and praying for you and your family and I'm hoping for the best. You are amazing and you have a beautiful family. Tiako ianao!

Marlise said...

Wow. We will definitely be praying for you and your wonderful family. We miss you!

Katie said...

Just want you to know I'm always thinking and praying for you guys. Give me a call when you're ready.

Jeannette Ring said...

Catherine, that was such a touching post. You and your family are in my thoughts and prayers. Sending hugs.

Janna said...

We are praying for you guys and always willing to help in any way.

sharee said...

Cat, I didn't even know you were pregnant but am so saddened by this news. You and your family will be in prayers.

Rebecca said...

I am so sorry to hear this news. I know that you guys will be able to find strength through your faith....
My best friends sister lost her twin daughters just days after their birth. This is a link to her blog, she is a beautiful writer, speaker and person who might be able to give you a lot insight and support. http://aubreyandellie.blogspot.com/
You all are in our thoughts and prayers for peace and strength through this time.

The DeBenning Diaries said...

Oh Cat :( I just read your blog update. I am so deeply sadenned to read this & my heart goes out to your whole family.

Merilee said...

I have tears in my eyes and a lump in my throat from reading your post. My heart hurts for you and your beautiful family. I can't even begin to imagine all that you must be experiencing right now and all that you will continue to experience through this all. Please know that you will be in my thoughts and prayers.

Alice said...

Sorry to hear this. Thinking about you! Cherish the next several months with him in your womb where you can protect him:)

Erin said...

I love yer guts! Landon is a wonderful name, which is fitting to be part of such a wonderfully beautiful family.

Quincey said...

Love you Catherine, stay strong!

Kimberly said...

Oh, Cath! There's nothing I can say to make you feel better. Just know that we love you and your family!

Jan said...

I love you and your family, keeping you in our prayers!

Katie @SwimBikeQuilt said...

I realized I don't have your email. I've been wanting to send you a note since I read about this. Lots of love going your way.

My best friend's sister passed away at 11 or 12. She was born with trisomy 13. Her mom, Kris Holladay, started a parents' and family organization. http://www.trisomy.org/conference/ If you would want to talk to Kris, I'd be happy to put you in touch. katieblakesley at gmail dot com. Anyway, we love you and are praying for all five of you. Katie

Brad said...

Mahereza ry namako! This is sad news for sure, but you definitely have the right attitude about it. You'll be in my prayers.